Monday, 2 July 2012

Is there a diet for MS?




When you have an autoimmune condition, you feel a little bit helpless as you have no control over what your body is doing to itself. Diet, exercise, and how we choose to live our lives, are in our control, so it seems only natural to turn to these things to improve the quality of our lives and gain some sense of control.


Warning - This is a LONG post.  If you have MS, I have tried to include links for further reading. 

There are a couple of 'diets' to consider.  They're not really diets, rather healthy eating.

The Australian Heart Foundation Diet

When the area co-ordinator from MS Queensland came to visit me, he said they recommend healthy eating in line with the Australian Heart Foundation Guidelines.

I have read many reports from both the Heart Foundation and Australian Government web sites, but let's keep it simple.  Basically the recommendations are along these lines:
  • Eat plenty of fresh fruit and vegetables.  Include 5 serves of vegetables and 2 serves of fruit per day.
  • Choose wholegrain breads and breakfast cereals.  Include pasta, noodles and rice.
  • Try to include legumes and pulses in at least 2 meals per week (baked beans, kidney beans, split peas, broad beans, chickpeas etc...)
  • Use spreads made from canola, sunflower or olive oil rather than butter
  • Choose cooking oils such as canola, sunflower, soybean, olive, sesame and peanut oil.
  • Limit saturated fat to less than 7% of your total daily energy, and trans fats to less than 1%
  • Eat 2-3 serves of oily fish per week.
  • Select lean meat and poultry.
  • Limit processed meats (eg: sausages) and deli meats (eg: salami)
  • Limit take-away food such as pies, pastries, fried foods and creamy pasta dishes to once per week
  • You can include up to 6 eggs per week
  • Choose reduced, low or no-fat dairy products
  • It's better not to add salt to food.
  • Limit sugary, fatty and salty snack foods such as crisps, cakes, pastries, biscuits, lollies and chocolate.

A summary from the Heart Foundation can be found here
A more detailed report of fats can be found here.
and if you've got plenty of time there's a 283 page document by the National Health & Medical Research Council called Dietry Guidelines for Australian Adults
Well give a girl a disease and she'll read!


The Swank Diet

Yes - I know what it sounds like, but actually this guy was amazing!
Roy Laver Swank, was a neurologist who believed there was a possible correllation between high saturated fat intake and MS.  In 1950, whilst working at the Montreal Neurological Institute, Dr Swank started to put patients with MS on a low-fat diet and then followed their progress for an incredible 36 years.  You can read about him here.  In his book The Multiple Sclorosis Diet Book, he outlines his low-fat diet:

  • Limit saturated fat to 15grams per day
  • Unsaturated fat (oils) should be 20-50 grams per day
  • No red meat for the first year, then 2 oz (57g) of medium fat meat or 3 oz (85g) of low-fat meat once per week
  • Chicken & turkey breast (Trimmed, no skin) 4 oz (113g)
  • Allowed unlimited fish but count the oil from oily fish eg: salmon
  • Allowed 3 eggs per week
  • Dairy food must contain 1% or less of butter fat (this eliminates most dairy)
  • Include grains & cereals - wholemeal preferred
  • Nuts & seed allowed - count the oil
  • 2 pieces of fruit per day
  • 2 cups of vegetables per day
  • The following were not allowed - butter, margerine, lard, coconut, palm oil, hydrogenated oil, all processed foods containing saturated fat eg: commercially prepared pastry, cakes, biscuits etc...

A summary of the diet can be found here
The book is divided into two parts - an explaination of the diet and research, and a recipe section.  The recipes are useful, just a little uninspiring, but the book was first published in 1972.
The results from his study are quite remarkable.  To see a copy of the results published in The Lancet Medical Journal in 1990, see the OMS website here.
The results are quite detailed but basically, Swank divided the people in the study into good dieters (less than 20g sat fat per day) and poor dieters (more than 20g sat fat per day).  The results show the change in neurological grade (disability) and the death rate - all causes, and MS only for each group.  Overall the good dieters declined less and lived longer than the poor dieters.
Dr Swank died in 2008 at the age of 99.

Professor George Jelinek - Overcoming Multiple Sclorosis (OMS)

Professor Jelinek wrote a book called Overcoming Multiple Sclerosis - An Evidence-Based Guide to Recovery.  A very dear friend gave me a copy of this book only a few weeks after I was diagnosed and it was the single biggest influence in how I chose to deal with my MS.

Professor Jelinek was an Australian Professor of Emergency Medicine, when just like his mother, he was diagnosed with MS.  He undertook extensive analysis of medical research, and developed a recovery program based on diet, exercise and lifestyle factors.  This program is outlined in his book and on the website Overcoming Multiple Sclorosis

These diet recommendations are based of the work of Swank and other research, but rather than have to count fats and oils, he recommends eating a plant-based wholefood diet, plus seafood, avoiding saturated and altered fats.
  • Eat as often as desired - fruit, vegetables, grains, legumes, soy products, white fish.
  • Eat in Moderation - oily fish, shellfish/other seafood, avocado, olives, nuts & seeds
  • Eat Occasionally - tea, coffee & alcohol
  • Eat Never - dairy products (due to evidence that there may be a link between dairy and MS), meat, egg yolks, commercial cakes, most fast food, margerine, foods fried in oil, palm oil and 'vegetable oil'

He has jokingly coined the phrase "aqua-vegan" to describe his George friendly food.
I would definately recommend this book to anybody who has MS.  If you have MS or know somebody with MS, you can get a copy of the book free through The Gawler Foundation.  As it was only published in 2009, the research and evidence is still relevant.


Dr Terry Walhs - Minding My Mitochondria

Dr Walhs also has MS.  Her health was deteriorating to the point where she was using a tilt recline motorized wheelchair.  She also took control of her diet and improved her health.
You can see her You Tube video here.  She also has a website here

Dr Walhs started her diet based on a hunter gatherer (Paleo) style diet but ensured it included all the nutrients she needed for her brain cells and her mitochondria. I had never heard of mitochondria - so here is a definition from Biology4Kids (let's keep it simple huh?) -  Mitochondria are know as the powerhouses of cells.  They are the organelles that act like a digestive system that takes in nutrients, breaks them down, and creates energy for the cell.  Got that?
The basis of the diet is:

  • 3 cups green leaves - kale, parsley
  • 3 cups sulpher rich vegetables - cabbage family, onion family, mushrooms
  • 3 cups of bright colour - capsicum, carrots, purple vegetables, berries, peaches, oranges
  • wild fish - omega 3
  • grass-fed organic meat, including organ meat
  • seaweed for iodine
  • No grains (gluten), potatoes or dairy (caesin protein)
  • No processed foods

 Confused?

Yep.  If you take meat and grains out of the picture, where there are opposing views, you can see some common elements across all 'diets'.  Namely

Reduce all saturated fats in your diet
Eat omega-3 rich foods
Eat plenty of fruit & vegetables
Reduce or eliminate dairy
Reduce or eliminate processed foods

Now that's food for thought!

I'm sorry this post is so long, but to understand what I am trying to achieve with The MS Foodie, I wanted to provide a background.

Summary
For those of you who were patient enough to read this post or at least scroll to the bottom, this is for you.

I'm ditching commercial food
 For REAL food, minus the dairy







Friday, 29 June 2012

A Pretty day of pictures

Thank you for all your love and support with my last post.  Today the MS Nurse came to visit, and taught me how to give myself daily injections.  I did ok.  Managed to do it, no problems.  Then I cried because it made it feel so real.  Anyway, I want to end the week with pretty pictures that make me feel happy.  I hope you like them too.

Wouldn't it be nice to wake up in Paris and have breakfast on the balcony.



Go for a walk through the lavender



Find out what's on the other side of the gate

Source: houzz.com via Stylish on Pinterest


Have lunch with the girls


Receive flowers from somebody special




Watch your favourite movie



Relax and unwind,

Source: google.com via Stylish on Pinterest


before popping off to bed.






Source: tumblr.com via Stylish on Pinterest













Tuesday, 26 June 2012

It's Official. I'm one of the 0.1%

This is a really hard post for me.  Some of you will know I had an MRI back at Easter, and nervously spent my time pinning while I waited for the results.  Yesterday I went to a new neurologist for a review and second opinion.  She confirmed my diagnosis.  I have Multiple Sclorosis (MS).


What is MS?
When I was told by the first neurologist that he thought it was MS, he asked if I knew what it was?  Apart from doing the MS read-a-thon as a kid I really didn't have a clue. 
MS is an auto-immune degenerative disease.  Your own immune system attackes the myelin sheath (the fatty lining) around your central nervous system (your brain and spine).  The lining is a bit like the plastic coating around electrical wires, when it is damaged the wires (or in my case nerves) are exposed and don't work properly.  The messages get disrupted or don't get through.

Who gets MS?
About 1 in 1,000 people in Australia have MS (the other 99.9% don't).  According to MS Australia, twice as many women as men have MS, with the onset of symptoms occurring most often between the ages of 20 and 40.  It is often referred to as a young person's disease.  I'm 42.  My neurologist said to me it is quite possible that I have been living with the condition for years but the symptoms have been mild.  In hindsight, I can now see some of those symptoms that I dismissed as being 'normal' or 'nothing to worry about'.

Cause & Cure
This is the bad bit.  Researchers still don't know what causes MS and there is no cure.  Around the world, there is much research being done.  They're getting close but they're not quite there yet.




To tell or not to tell?
I really struggled to know whether to 'go public' with this. I'm pretty much a wear your heart on your sleeve kind of girl, so late last night I published a photo on instagram, and then it was done. It was out there, and I didn't feel any pressure to keep this 'big secret'. I hope that by sharing this, I have helped to spread some awareness of the condition.


Now what?
Yesterday I went to the pharmacy with my first prescription for a drug that I must inject myself with everyday, much like diabetics (another auto-immune disease) have to inject themselves with insulin everyday.  The medicine won't cure the MS, but it helps.  Much like a diabetic, I now need to take control of my diet and lifestyle so that I can lead a happy and fulfilling life.  I don't mean just eat an apple, I mean I really have to overhaul my whole diet and lifestyle - eat really well, exercise, control stress and simplify my life.

I believe:
You are what you eat
You are what you think
and you are what you live.

Some Changes to my Blog
I am a home decor girl.  It's in my blood.  I will go into a homewares/vintage shop and be in my own little world.   Touching and feeling things.  Imagining where it would fit in my home.  You ladies can relate to that, it's just the way we are.  So my blog will still have posts about making over furniture, creating a stylish home, and fun craft and DIY projects.  But ... one of the biggest challenges I have faced lately is how to eat really healthy delicious food that is low in saturated fat and dairy-free.  I've had the good fortune to meet half a dozen ladies with MS in the past few weeks, and we are all in the same boat. Asking each other "how do you mash your potatoes without butter and milk?  So over the coming weeks I will be adding a page to the top of my blog called 'The MS Foodie', to share the food I've found.  That doesn't mean you have to have MS to eat the food - it's just really healthy, tasty food - best enjoyed in a stylish setting!


Love and big virtual hugs to you all.

Thursday, 21 June 2012

Hello Birdy

It's the last week of school for my two kids and it is crazy busy this week, so I'm going to cheat and share something with you that doesn't involve me having to clean my daughter's room and photograph it.  Cleaning her room will probably take all holidays to complete!  Recently, little Miss Stylish and I went shopping for new bed linen and found this.


It's so pretty.  It features applique and crochet birds on branches, with flowers and berries.  So sweet.  There is a row of pom poms across the bottom.  Can you imagine how much time and effort it would take to make something like this?  I know, because I made her birdy bed curtains.



The birds on the bed linen and the curtains are very similar.  How lucky?


The new bed linen works so well with the bed curtains, and if her room is ever tidy again I might actually photograph it, but with 3 weeks of school holidays upon us, don't hold your breath!  Happy school holidays everyone.

Friday, 15 June 2012

Stripping Back My Blog and Showing more of myself

With everything that has been going on in my life lately, I really needed to have a re-think about blogging.  I still enjoy blogging.  It's good therapy for me, but I decided I needed to strip my blog back to just what I needed it to be, so I gave it a little makeover.


I created a new header.  I am no photo editing genius, I just used Picasa and followed the instructions at Blissfully Domestic.

I realise everybody has a different way of following blogs.  Over the past year my reading list in Blogger had become so large that I was missing posts from some of my favourite blogs.  I did a bit of pruning to my reading list (sorry) and made sure I put most of my favourites on the blog roll down the right hand side of my page, so I don't loose them.

I kept different ways for other people to follow this blog if they want to - Google Friend Connect, Blog Lovin', email, and rss feeds.  (I had no idea how many people use email to follow.  I found my email subscribers by going to my feedburner.com account - Hello!  I didn't realise you were there.) 
Following is a funny thing.
I love reading other people's blogs and I hope that people like some of my posts.  If you want to follow - great, if not that's fine too.  I blog because it makes me feel good.  In fact what I wrote in my first post, still stands true.  Whenever I'm feeling a little down about my home, I look back on the blog posts I've written in the past 12 months and I can see how far I've come.  I'm grateful for that and I've made some lovely blog friends along the way.

I got rid of some stuff on my blog.  I don't need to know what my ranking is on Blog Top Sites etc...  I blog for me.  I don't have a shop or etsy store.  I don't have sponsors or advertisers.  I'm not a nuff nang blogger, nor do I run competitions or giveaways.  There is NOTHING wrong with any of this.  Some bloggers work really hard and deserve financial reward, and I LOVE some of the online shops and etsy stores run by bloggers.  It's just that my blog's just for fun so I don't want to look at statistics.


What I do love to do is pin.  It was the perfect distraction for me when I was waiting for my MRI results.  So I added a pinterest rss feed to the right side margin so you can see what my latest pinning phase is. If you hover over the pictures, they get bigger so you can see them properly.  To add a pinterest feed to your blog, follow the instructions at Code It Pretty.  If you scroll down through the comments you'll see I was a bit of a wally and couldn't work out how to do it!


I also added an Instagram feed.  This is part of where the getting naked comes into it.  I am a pretty down to earth kinda girl, but I'm one of those people who likes things to look nice ... a little bit stylish.  My kids always say - 'Mum you're a little bit posh'.  That's where the name Stylish Settings came from.   I guess it might sound a little bit stuck up.  Anyway what I like about instagram is that it's photos of your 'real' life.  I've gotten to know other people better by seeing their instagram photos and I thought if I braved it and shared some of my real world, you might get to know me a little better too.

To add the instagram feed, Beth from A Welsh Girl In Australia wrote a good post and then helped me add the follow me button.  Thanks Beth.
OK - as for these two.  I set them up a while ago, and I'll leave them as they are.  They are synced to my blog so new posts appear.  If you follow blogs by one of these methods you'll see mine right at the bottom of the side bar.  I tried following people on Facebook but when you have a blog facebook account it's hard to 'like' things and comment - or at least blondie here couldn't work it out?  As for twitter - I got so sick of reading tweets for giveaways and promotions that I stopped reading them.  Maybe I'll work out a way around that?

Finally I added a Print It button to the bottom of the page.  You can see how to do that at Print Friendly.  I hate it when you want to print up some step by step instructions or a recipe and you have to print pages of ads and comments.

So that's it.  My longest ever blog post, and a fresh new look.
Now if anybody knows how to turn off the Google Friend Counter so it shows nothing rather than the number of followers, I'd be grateful if you could tell me how to do it.


Finally here I am - not hiding behind sunglasses!


Wednesday, 13 June 2012

Gift Wrapping

I have a lot of birthdays in June, and I've started buying and wrapping presents.


I love beautifully wrapped presents, and I thought I'd share some photos of wrapping I like.

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Happy birthday to all you geminis.

All photos and credits can be found at the pinterest board - Gifts All Wrapped Up
(I've tried using pinterest embed function to give you the link to each photo but I can never align all the photos properly)

Friday, 8 June 2012

Expedit

I am one of the many people that have an IKEA Expedit bookcase. 
Mine is about 10 years old and is 5 x 5, giving 25 pigeon holes.


The 7 square baskets are also from IKEA.  Again, these are about 10 years old.  The baskets IKEA sell now have hinges so they can fold flat.  My baskets are wicker on timber frames.  Over the years the baskets have gone from holding baby toys, to Lego and now DVD's.


Where the other pigeon holes were once filled with toys and games, they are now filled with simple items I have collected over the years.


In fact, I have collected a lot of bits and pieces.


The seagull bird is from The Tenby Store in Queenscliff, Victoria.  The white birdhouse is from the Wooloongabba Antiques Centre.  The heart tray and birds were from a lovely little homewares shop in Mildura, Victoria.  The white pedestal bowl was from Blue Illusion.  The little timber bowls with lids were hand carved by my dad and step-grandfather.  They were both talented woodworkers.  The other finds came from discount shops, Target, Loot and Spotlight.


So that is my Expedit.  It fits perfectly along the wall in our back loungeroom. 

I miss you Dad.  It's been 5 years yesterday since you passed away.


Sharing at Miss Mustard Seed
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